Day 1 :
Keynote Forum
Heather L MacDonald
University of New Brunswick, Canada
Keynote: Respite for Parents of Children who require Complex Care
Time : 10:15-10:45
Biography:
Dr. MacDonald completed a Master’s degree in Nursing at the University of Toronto, Canada and a PhD at the University of Manchester in the UK. Currently she is a Professor in the Faculty of Nursing at the University of New Brunswick (Canada). Dr. MacDonald’s doctoral work examined respite for parents who were caring for children who required complex care. This paper comes from that work. Dr. MacDonald has three children of her own.
Abstract:
Current literature states that advances in nursing and medical care and developments in pharmaceutical and health technologies, have led to an increasing number of severely disabled children who require complex health care. These children who require complex care are being cared for in their homes by their parents. The purpose of this study was to better understand parents’ caregiving experiences and to explore the values, beliefs, and practices that influence parents’ use and satisfaction with respite services.rnAn ethnographic study involving 19 mothers, 4 fathers, and 4 grandmothers and 3 grandfathers of children between the ages of 8 and 16 years of age who required complex care and their respite providers, including 13 nurses, and 4 social workers from 3 counties in Northwest England was conducted. Data were collected through in-depth interviews, participant observation and document review.rnThe context of caring for a child with complex care needs was described and four broad themes were identified in the data. These themes include: parents caring, caring and the impact on parental identity, the nature of respite, and fair play. These themes will be discussed in the presentation.rn
Keynote Forum
Hee Yun Lee
University of Minnesota, USA
Keynote: Parents’ Health Literacy and its Link to Children’s Health and Mental Health Service Utilization and Outcomes in Asian American Immigrants: A Finding from Population-Based Survey
Time : 10:45-11:15
Biography:
Hee Yun Lee is a Professor and Director of Research at the University of Minnesota, Twin Cities, in USA. Her major research areas include cancer health disparity and health literacy among immigrant and refugee populations. She is currently conducting several RCT trials to improve cancer screening behavior and health literacy funded by the National Cancer Institute, Susan Komen for the Cure Foundation, and Department of Defense. She has published more than 47 papers in reputed medical/public health journals and has been serving as an editorial board member and currently serving as an Associate Editor for a high impact journal.
Abstract:
Health literacy is an important barrier to health service utilization and outcomes due to its impact on an individual’s ability to communicate with a service provider and ability to understand and follow health instructions. Most of the research thus far has examined its impact on physical health service utilization or outcomes, with findings generally supporting a link between parental health literacy and child physical health service utilization and outcomes. However, very little research has been done looking at the impact of parental health literacy levels on child mental health service utilization or outcomes. Due to the service gap that exists between children in need of services and those who receive services, it is important that we understand the barriers that may prevent children from receiving the mental health services they need. The present study used data from the 2007 California Health Interview Survey, with 9,399 parents included in the final sample. Multiple regression analyses were conducted to examine the impact of parental health literacy on both child mental health service utilization and mental health outcomes. The results did not support a link between parental health literacy and service utilization for children or teens, but did support a link with child mental health outcomes for Asian and African American children, but not teens. These results suggest that not only should the impact of health literacy be looked at within rather than across groups, but also that while health literacy may not be barrier to utilization of services it may impact experience and outcome of services. rn
Keynote Forum
Hideya Kodama
University of Akita, Japan
Keynote: Assessment of nocturnal sleep architecture by actigraphy and one-channel electroencephalography in early infancy
Time : 11:30-12:00
Biography:
Hideya Kodama graduated from Akita university of Medicine in 1982, and promoted to a professor of the department of maternity child nursing at Akita university graduate school of medicine and faculty of medicine in 2000. Since them, he have studied about a human circadian rhyme, including a sleep-wake cycle, a melatonin rhythm, regulation of autonomic nervous system and a body thermal rhythm, with nurses who entered his postdoctoral course. Now, he manages several research projects of the doctorial course regarding this issue, and his research subjects include early infants, pregnant women, puerperant and adolescent girls.
Abstract:
Objective: To elucidate characteristic sleep architecture of different nocturnal sleep patterns in early infancy. Methods: Participants were 27 infants at the same conceptional age of 3-4 months. Nocturnal sleep of these infants was monitored at home by simultaneously using actigraphy and a one-channel portable EEG device. According to the infants' activity for 6 hours from sleep onset, each night's sleep pattern was classified into three categories: sleeping through the night (STN), sleeping with weak signals (crying/fuss episodes <10 minutes or fed), and sleeping with strong signals (crying/fuss episodes≧10 minutes). Associations of sleep patterns with sleep variables (percentage of time in sleep stages, pattern of slow-wave sleep (SWS) recurrence, etc.) were investigated. Results: Analysis was conducted in 95 nights. STN pattern (n=36) was characterized by suppressed body movements while EEG represented a state of wakefulness. Weak signal pattern (n=27) tended to indicate rich and regular distributions of SWS across the night. Strong signal pattern (n=32) was characterized by reduced sleep time, although the amount of SWS was not reduced to that degree. Exclusively breastfed infants accounted for 78% of weak signal patterns, whereas formula-feeding infants, 67% of STN patterns. In several nights with STN or strong signal pattern, SWS did not occur in >50% of the sleep cycles. Multiple regression analysis showed that exclusive breastfeeding may increase the proportion of SWS in non-REM sleep. Conclusions: Each nocturnal sleep pattern was associated with some sleep architecture, part of which would be attributed to infant's feeding methods.
Keynote Forum
Hamish B Wallace
University of Edinburg, United Kingdom
Keynote: Female fertility in survivors of childhood malignancy
Time : 9.30 to 10.00
Biography:
Dr Hamish B Wallace is a consultant in Paediatric Oncology at the RHSC, Edinburgh since 1992. He became a Leukaemia Research Fund Research Fellow under the guidance of Professor Steve Shalet in Manchester in the late 1980s when he developed my research interest in the late endocrine effects of the treatment of childhood cancer and completed my MD thesis. His main research interest is in fertility outcome and fertility preservation for cancer patients. He is the Chair of the CCLG Hodgkin’s Lymphoma Working Group (since 2002) and President of the European Network for Paediatric Hodgkin’s Lymphoma (since 2007). Wallace is a co-author of over 130 peer-reviewed publications, and four books. Most recently he co-edited with Prof Dan Green a multi-author book on “Late effects of the treatment of Childhood Cancer†and with Prof Chris Kelnar a book on “Endocrine complications of the treatment of childhood cancerâ€. He is the the co- founder and organiser for ESLCCC, a biannual conference on the late effects of the treatment of childhood cancer. Dr Wallace was Lead Clinician for the Children’s and Young Peoples MCN for Cancer in Scotland “CATSCAN†from 2007 to 2010. He is currently the Registrar of the Royal College of Paediatrics and Child Health.
Abstract:
With 70% of young patients with cancer becoming long-term survivors the issue of fertility outcome has become an issue of great importance (Wallace et al 2012). Female fertility preservation provides significantly different challenges to that for the male (Wallace et al. 2005). Embryo freezing is now a well-established procedure in many centres, but is not available for children who do not have a partner. Cryopreservation using vitrification of mature oocytes has become increasingly successful, but requires the patient to go through a course of hormone stimulation and is therefore not appropriate for children and young girls. Ovarian tissue cryopreservation has the potential advantages of preservation of a large number of oocytes within primordial follicles, it does not require hormonal stimulation when time is short, and is appropriate for the pre-pubertal girl. Disadvantages include the need for an invasive procedure, and the uncertain risk of ovarian contamination in haematological and other malignancies. Ovarian tissue cryopreservation in adult women with later re-implantation has resulted in at least 20 live births worldwide. rnrnWe strongly recommend that all young patients with cancer have an assessment made of their fertility prognosis before they commence treatment (Wallace WH et al 2012). We have previously published guidelines for patient selection in young female patients with cancer and in this lecture I will report our practise in a single centre that has offered fertility preservation since 1996. Ovarian cryopreservation was offered to 9% of our patients, and performed in 5%. The procedure was safe and without complications. All but one of our patients who have thus far developed premature ovarian insufficiency were identified pre-treatment using our criteria. More research is required before ovarian tissue cryopreservation in young patients with cancer can be considered to be an established technique available to patients out with IRB approved studies.rn